ALL Institute – Page 13

Including Patients and the Public in Research

Stories/Lived Experience

Author: Jamie Howell; PhD researcher, Department of Psychology, Maynooth University

Animation, 6 people on a blue background 3 healthcare practitioners 2 elderly people 1 person in a wheelchair and a female. — BioMed Central-

In recent years, health researchers have begun to embrace the concept of patient and public involvement (PPI). Rather than conducting research on or for various populations, we have begun to move towards working with patients and the public by prioritizing their needs and concerns. This allows researchers to learn from those who have lived experience and can help them design research projects which are more beneficial to the population being researched.

I first heard of PPI during my MSc, when my supervisor, Dr Rebecca Maguire encouraged me to include aspects of PPI in my research. Dr Maguire has worked as both a researcher and as a patient advocate, and her expertise has been invaluable to my own research.

Promoting Equal Participation and Eliminating Discrimination: Time to Change the Narrative.

Social Lives

Author: Mohamed Maalim – PhD Researcher, of the ALL Institute, Department of Psychology, Maynooth University

Blue Butterfly with Brown slate background. Zero Discrimination Day 01 March 2021 wording in top right hand corner

The Zero Discrimination day is celebrated annually on the 1st day of March, to reflect on our rich human diversity and the need for equal opportunity to enjoy fundamental human rights, and to fight against discrimination in all its forms and manifestations. This year, above all previous, the ongoing global COVID-19 Pandemic with all its disruptive nature and the misfortune it has brought and caused, has also offered humanity a glimpse of its ‘non-discrimination’ attribute. The advent of COVID-19 reinforced upon us that we are all equal as humans in our susceptibility, our fear and concern for self and others, and indeed in our hope of getting back to as ‘normal life’ as possible or whatever that ‘normal’ means.

Additionally, with Covid-19, we have adopted a common enemy enforcing upon us an almost military-type operation to fight back. The nations of the world in an unprecedented fashion formed ‘NATO’ type alliances and collaborative networks with the ‘Big Tech’ and ‘Big Pharma’ in a concerted effort to develop digital contact tracing and tracking apps‘ and vaccines, respectively. Individual governments assumed the role of commanding officers alongside senior health personnel, frontline healthcare workers, and other so called ‘essential’ workers as the foot soldiers of the operation, while the general public’s hearts and minds were won by calls to stay at home to suppress the virus.

ALL’s Contribution to the United Nations Sustainable Development Goals

Social Structures

Authors: Kimberly Wright, Postgraduate LLM student Global Legal Studies & Anastasia Campbell, Administrative Lead, ALL Institute

Black and White Picture showing young girl in front of a gate holding a sign saying 'Justice for______________x I left blank because I'll probably need this sign again next year." — Photo by Ehimetalor Akhere Unuabona on Unsplash

On the 20^thof February, the United Nations World Day of Social Justice gives the world an opportunity to celebrate peace, social inclusion, and respect for human rights. Those values are at the core of the United Nations (UN) action, and, in particular, of the Sustainable Development Goals (UN SDGs), which were adopted by all UN Member States in 2015 as a universal call to action to end poverty, protect the planet and ensure that all people enjoy peace and prosperity by 2030. The UN SDGs consist of a total of 17 universal goals adopted by all 193 UN member states aimed at improving and ensuring a sustainable future for all. These goals include poverty, inequality, climate change, peace and justice among various other causes for concern. The Assisting Living and Learning (ALL) Institute’s mission is to ensure that all people around the world, particularly those who have been subject to marginalisation, achieve a good quality of life and full participation in society through the use of appropriate technologies and evidence-based policies and laws. Our research is dedicated to promoting human rights-based and person-centred systems to empower people and enhance social inclusion and involvement.

A Digital Bounce for ALL? – Audio Version

Audio Version

A Digital Bounce for ALL – in Maynooth University, Ireland.
Voiced by Hilary Hooks.

A Digital Bounce for ALL?

Click here for Audio Version

Authors: Deirdre Desmond, Delia Ferri and Mac MacLachlan; ALL Institute Co-Directors

Picture of the three ALL Institute Co-Directors in front of a white back drop. From left to right: Deirdre Desmond, Mac MacLachlan, Delia Ferri — *^{Deirdre Desmond, Mac MacLachlan and Delia Ferri, ALL Institute Co-Directors}*

“Life is not a series of gig lamps symmetrically arranged; life is a luminous halo, a semi-transparent envelope surrounding us from the beginning of consciousness to the end” Virginia Wolf, ‘Modern Fiction’, 1921.

2020 was certainly a difficult year for many of us, both on personal and work levels, and, despite these challenges, it is noteworthy that the work of the ALL Institute has not only proceeded, but also the commencement of several research projects ensure that we will continue to contribute in many respects to the building of a fairer society. In the past three years, and more so in 2020, we have endeavoured to reach out to different communities and stakeholders at the local, European and global levels. We also launched this blog on the 3^rd December 2020, a particularly significant date, the International Day of Persons with Disabilities, to signal our commitment towards inclusion and equality.

I do not volunteer. I am a volunteer.

Stories/Lived Experience

Author: Dr. Emma Smith, Postdoctoral Researcher, AT2030, ALL Institute, Department of Psychology, Maynooth University

A few weeks ago, I was asked by a fellow volunteer, “Why do you do this?” My answer wasn’t eloquent and was far from complete. I talked about my passion for the cause (that seems to be a given). I spoke about having a skillset I felt I could contribute to help build community. I talked about getting more from the organizations I work with than I ever put in. However, as the weeks have passed, I’ve realized it’s deeper than that – not everyone with passion and a skillset contributes as a volunteer. They contribute to their communities in other ways – they go above and beyond in their work lives, they raise incredible kids who inspire a generation, and they are committed friends and family members.

What is it that makes a volunteer?

Welcome to Ideas in ALL – Easy to Read Version

Easy to Read Version

Welcome to the blog of the ALL Institute – in Maynooth University, Ireland.

We are researchers and we work at a university in Ireland.

We have created this blog.

A blog is a website that is updated often with ‘posts’.

Posts are articles or videos on a website.

Each part of the blog is written by a different researcher.

The name of our blog is “Ideas in ALL”.

We want to use the blog to:

tell you what we do
tell you about new ideas, and
comment on what is happening in the world now.

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