Nothing Without Us: Considering Public Patient Involvement in Research

Social Technologies

Author:  Joan Alaboson is a Doctoral Researcher in the Department of Psychology, Maynooth University. She has a background in medicine and an MSc in Public Health with broad research interests in non-communicable diseases, particularly mental health, social determinants of health and quality of life.

Joan Alaboson
Joan Alaboson

‘What can be done to make settling into the PhD, better?’ asked Dirk, the Director of the Science Foundation Ireland’s Centre for Research Training in Advance Networks for Sustainable Societies (ADVANCE CRT) at a meeting with funded PhD students. Being the only one in the room that had recently commenced my studies, at that moment I felt there was a deep sense of concern for my well-being by ‘management’. It was the first of such fora I’d attended, and I left with a lasting impression of being in relatable company during my studies.

True inclusion, however, could often be elusive, despite best efforts. There is hardly any organization, entity or group that does not seek to represent the interests of those concerned. It may be expressed in a vision, mission, goals, or activities. Yet, many can be left out. Sometimes, it is a fault inherent in group development, when diverse people are not present to consciously bring unique perspectives to the fore. Similarly, it may result from work protocols or culture that fail to recognize and may neglect, systematically, the views and or needs of diverse people.

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Building a European Health Union

Social Structures

Author: Dr Emma McEvoy, Postdoctoral Researcher, SHAPES Project, ALL Institute, Department of Law, Maynooth University.

Emma McEvoy Profile Picture
Dr. Emma McEvoy

Less than a year ago, the sudden and somewhat unpredicted outbreak of the Covid-19 pandemic across Europe pushed most national health systems to their limits. Healthcare workers faced the brunt of the pandemic, dealing with shortages of Personal Protective Equipment (PPE), medical supplies, medicines and coping with Intensive Critical Units (ICU) bed shortages. The European Union (EU) as a whole was not prepared for the Covid-19 outbreak, and neither were any of the Member States. Society and the economy appeared to pause in time to support and allow front-line workers to navigate through the early chaos of the first wave of the pandemic. Many areas of society and the economy have yet to recover and re-start from this initial pause. This is also true of health systems. All EU countries, to some extent, paused or limited normal hospital operations, ranging from postponing routine cancer checks, to cancelling elective surgeries to some hospital day services.

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