Social Lives – Page 2

18/02/202217/10/2022

The future of work and disability: learning our way forward

Social Lives

Author: Joan O’Donnell, Doctoral researcher with the Assisting Living and Learning (ALL) Institute, funded by ADVANCE CRT and the SFI. She lectures in the MSc programme in Systems Thinking In Practice with the Open University and is the author of the Employers for Change report referred to in this blog.

Joan O Donnell

Continuous advances in technology and Assistive Technology (AT) enhance the range of work that people can do outside the office environment, making working-from-home (WFH), hybrid or remote working a realistic option for many workers with disabilities. It may suit those seeking greater flexibility in their working day, allow for better management of disabling conditions at home or sidestep the need to negotiate public transport.

Disability and work poses a complex issue that persists despite broad recognition of the interrelationship between disability, poverty, education, housing in the Sustainable Development Goals (SDGs) and the UN Convention on the Rights of Persons with Disabilities (CRPD) Article 27, which commits to safeguarding and promoting the right for disabled people to work on par with others. While the Organisation for Economic Co-operation and Development (OECD) suggests there is a greater need to engage employers to build a better world of work for persons with disabilities, the ESRI finds that there is also a need to understand the experience of disabled people in work.

20/12/202117/10/2022

Supported Decision Making and Next of Kin: The DSS Perspective and new perspectives for innovative participatory research

Social Lives

Author: Hannah Casey, Assisting Living & Learning( ALL) Institute Blog editor and PhD Candidate, Decision Support Service

Hannah Casey

Supported Decision Making is a method that may be employed by persons who require help to make decisions in their day-to-day lives. These decisions may range from, where to go on holiday, to, how to manage financial concerns. Supported Decision Making is gaining traction and importance across the globe, and particularly in an Irish context in anticipation of the Assisted Decision Making (Capacity) Act 2015, set to be commenced in full by mid-2022. This has the added effect of ensuring Ireland may fully honour Article 12 of the United Nations Convention on the Rights of Persons with Disabilities, which states that persons with disabilities have the right to make their own decisions, and enjoy the same legal capacity that people without disabilities have in their lives. The Decision Support Service (DSS) has been established to support persons to exercise their right to make decisions, with the key understanding that a person’s capacity to make decisions should be assessed by reference to the decision in question.

09/12/202117/10/2022

Autumn School Reflections: Inclusive Methods for a Shared Sustainable Future

Social Lives

Authors: Tadhg E. MacIntyre Assistant Professor, Dept. of Psychology, Maynooth University and scientific coordinator of the H2020 project GoGreenRoutes. Chloe Mooney is a third year BSc. Psychology student and was an intern for GoGreenRoutes this semester. Cassie Murphy MA is second year MU Psychology doctoral student, on a scholarship funded by GoGreenRoutes, supervised by Dr. Elaine Gallagher and Dr. Tadhg MacIntyre.

Stephen Seaman (Head Groundsman) explains how they cultivate a green campus approach.

The Maynooth University green campus with 700-year-old trees provided an authentic backdrop to our GoGreenRoutes project Autumn School concerned with understanding the links between nature and health. Our award winning campus venue (see here for Green Shoots feature) was a highlight for participants who had a tour of the grounds with Stephen Seaman supported by Rachel Freeman (TU Dublin, PhD candidate on GoGreenRoutes).

The wonder of our bucolic campus, recently featured on RTÉ, was not lost upon our new President Eeva Leinonen who noted how nature may be vital for effective leadership too. Our president, a psychologist, quoted as she opened the event, the 44th President of the United States Barack Obama who, in his memoirs had said, how the one-minute open-air commute along the colonnades that bookmarked his day helped him clear his mind and free him from stress. This speech was followed by a superb strategic overview of gender, inclusion and diversity at Maynooth University and beyond, by Vice-President for Equality, Diversity and Inclusion Dr Gemma Irvine, which set the tone for event, with strong gender representation across all the sessions (over 60% Women speakers) and more emphatically, an appreciation for inclusion at every level.

03/12/202117/10/2022

Disability and the Media: Representation Matters

Social Lives

Symposium

Click for Audio Version

Author: Dr Emma Smith, Assisting Living and Learning (ALL) Institute Member and Post-Doctoral Researcher; recipient of the prestigious Marie Sklowdowska Curie Actions Individual Fellowship

Emma Smith

I distinctly remember the first film I saw specifically related to disability. The film was Murderball, a documentary about the US and Canadian wheelchair rugby teams, their rivalry, and their experience in international competition. What was impactful and memorable about the film was not the focus on disability, it was the opposite. It was the fact that the film focused on team dynamics and personal experiences – things which you’d see in any documentary about any sports team. Of course, disability was relevant to those experiences, but for me, it was the first time I had seen media which was about disability, without being entirely focused on the disability itself. It gave me good perspective – people with disabilities were, first and foremost, people. They spoke openly and honestly about their experiences – they let me into their world for a moment, and contributed significantly to my decision to become an Occupational Therapist – a job which would let me help people with disabilities be people, to do the things which were meaningful to them.

Since then (it’s been a few years), I’ve always noticed those key moments when people with disabilities were represented in the media. For a long time, they were few and far between. Media often portrayed people with disabilities only in relation to their disability, or with stereotyped understanding of disability and not for the rich and full lives they were living. We often saw disability represented in relation to charity – a cause for fundraising. As the conversation shifted, we saw a rise in tokenism, where a person with a disability might be included in a conversation, but often only to fit a quota, or tick a box.

23/08/202117/10/2022

Promoting Engagement in Sport for Persons with Disabilities Through Assistive Technology

Social Lives

Authors: Dr. Emma Smith, Postdoctoral Researcher, AT2030, ALL Institute, Department of Psychology, Maynooth University and Ana Geppert, Masters student of Global Health at VU Amsterdam, intern with the ALL Institute at Maynooth University, in partnership with Loughborough University.

Photo by Audi Nissen on Unsplash: ESPN WIde World of Sports Complex, United States Womens wheelchair basketball — Photo by Audi Nissen on Unsplash

In celebration of the launch of the #WeThe15 campaign; the largest ever global human rights campaign to increase awareness and social inclusion of people with disabilities through sport, we would like to share some of our recent research in the area. #WeThe15 is an acknowledgement that at least 15% of the world population – over 1 billion people – live with one or more disabilities, each of whom is entitled to all of the rights and freedoms, and the benefits of social inclusion experienced by people without disabilities worldwide. Of those rights affirmed in the UN Convention on the Rights of Persons with Disabilities, Participation in cultural life, recreation, leisure, and sport (Article 30) is one that we have had a recent focus on in our work.

12/07/202117/10/2022

The Loud Silence on Disability and Sexuality; My perspective.

Social Lives

Author: Mohamed Maalim – PhD Researcher, of the ALL Institute, Department of Psychology, Maynooth University

Mohamed Maalim

11^thof July is celebrated as World Population day to highlight global issues on sexual and reproductive health and rights gender equality and the right to family life. Personally, as a husband and father to five children, am blessed and privileged to be able to exercise this fundamental human right to family life and family unity as enshrined in international and European human rights provisions. Many people, however, including people with disabilities, refugees, and others requiring international protection do not enjoy the right to adequate sexual and reproductive health in particular.

In this piece, I will discuss sexuality issues for people with disabilities from the perspectives of personal understanding and professional practice both as a research student and a registered Occupational Therapist. From an Occupational Therapy point of view, sexuality is considered an activity of daily living (ADL) by the American Association of Occupational Therapists. Occupational therapists may include sexuality as part of a routine evaluation of clients and address this area in occupational therapy interventions. Sexual activity and intimate social participation are part of meaningful occupational participation contributing to personal satisfaction while sharing intimate relationships may potentially impact one’s wellbeing and quality of life. Sexuality should not be misconstrued to mean only physical intimacy but as a holistic concept encompassing sexual activity, decisions, communication, identity, and choice.

01/03/202117/10/2022

Promoting Equal Participation and Eliminating Discrimination: Time to Change the Narrative.

Social Lives

Author: Mohamed Maalim – PhD Researcher, of the ALL Institute, Department of Psychology, Maynooth University

Blue Butterfly with Brown slate background. Zero Discrimination Day 01 March 2021 wording in top right hand corner

The Zero Discrimination day is celebrated annually on the 1st day of March, to reflect on our rich human diversity and the need for equal opportunity to enjoy fundamental human rights, and to fight against discrimination in all its forms and manifestations. This year, above all previous, the ongoing global COVID-19 Pandemic with all its disruptive nature and the misfortune it has brought and caused, has also offered humanity a glimpse of its ‘non-discrimination’ attribute. The advent of COVID-19 reinforced upon us that we are all equal as humans in our susceptibility, our fear and concern for self and others, and indeed in our hope of getting back to as ‘normal life’ as possible or whatever that ‘normal’ means.

Additionally, with Covid-19, we have adopted a common enemy enforcing upon us an almost military-type operation to fight back. The nations of the world in an unprecedented fashion formed ‘NATO’ type alliances and collaborative networks with the ‘Big Tech’ and ‘Big Pharma’ in a concerted effort to develop digital contact tracing and tracking apps‘ and vaccines, respectively. Individual governments assumed the role of commanding officers alongside senior health personnel, frontline healthcare workers, and other so called ‘essential’ workers as the foot soldiers of the operation, while the general public’s hearts and minds were won by calls to stay at home to suppress the virus.

19/11/202017/10/2022

‘You’re a teacher you’re a mother, you’re a worker’: Gender inequality during Covid-19 in Ireland.

Social Lives

Authors: Katriona O’Sullivan, Serena Clark and Amy McGrane
ALL Institute, Department of Psychology, Maynooth University

Mam is in a meeting (online) do not enter - and stay quiet! — My lock-down experience

When the schools closed in April of 2020, I found myself in the most stressful parenting situation of my entire parenting life. I was left to manage the education needs of my 3 sons; all of whom were at very different stages of their education journey. My studious, stressed-out 15-year-old was about to sit his Junior Cert, while the 11-year-old was in 5th class and the carefree 16-year-old in 5th year. As the ‘educated’ parent in our house and the mother, I was suddenly expected to manage much more than I normally would have. I am already in charge of most of the shopping, cleaning etc. and now the home-schooling too. I remember looking at my husband from across the top of my son’s laptop, after several failed attempts to log-in to Aladdin, thinking – we are not going to make it through this unless something changes. I also remember celebrating the night they announced that the Junior Cert was cancelled AND the constant guilty feeling I had because I let them all sleep late so I could get my own work done. As an academic working in education, and researching technology, I really had no idea how much stress education can bring to a family. Likewise about how hard I would find it adding home-schooling onto the other burdens I carry as a women and mother. I know I am not alone. My friends, colleagues and family feel the same. I have chosen to share some of my personal and research observations from the last few months to highlight some of the gender disparities that are being exacerbated by the pandemic in many homes across the island of Ireland. (Dr Katriona O’Sullivan)

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